Dr. Benson Publishes on Adequate Palliative Care

Congratulations to Dr. Becky Benson (General Pediatrics and Adolescent Medicine/Palliative Care) on her recent publication in the journal Pediatrics.

Levy C, Weeks KS, Benson RJ, Miller JM, Higgins J, Deutsch SA, Lantos JD. Failure to Provide Adequate Palliative Care May Be Medical Neglect. Pediatrics. 2019 Oct;144(4). pii: e20183939. doi: 10.1542/peds.2018-3939. Epub 2019 Sep 4.

Abstract: Doctors are required to notify Child Protective Services (CPS) if parents do not provide appropriate medical care for their children. But criteria for reporting medical neglect are vague. Which treatments properly fall within the realm of shared decision-making in which parents can decide whether to accept doctors’ recommendations? Which treatments are so clearly in the child’s interest that it would be neglectful to refuse them? When to report medical neglect concerns to CPS may be controversial. It would seem inhumane to allow a child to suffer because of parental refusal to administer proper analgesia. In this ethics rounds, we present a case of an adolescent with chronic pain who is terminally ill. Her parents were not adherent to recommended analgesia regimens. Her palliative care team had to decide whether to report the case to CPS.

Cifra and Tigges Publish and Receive Award

Congratulations to Christina Cifra and Cody Tigges (Critical Care) on their recent publication in the journal Diagnosis.

This work was presented as a platform presentation and was also awarded Best Quality Improvement Abstract at the recent American Academy of Pediatrics (Section on Critical Care) National Conference 2019 in New Orleans.

Staff Spotlight – Michael Colburn, MD, MEd

Dr. Colburn is Clinical Assistant Professor in the Division of General Pediatrics and Adolescent Medicine, and is the Director of the Adolescent Medicine program.

Husband Mike (yes we are both named Mike 😉 and I have been together for going on 12 years. We have 2 fur babies, Archer (a rescue black lab/border collie mix) and Bender (a Shetland sheepdog).

I’m a kid at heart. I enjoy comics, cards, and cocktails. Mike and I are always looking for friends to start up a game night.

My passion is teaching residents how to provide awesome care to adolescents … so I’m kind of already doing my dream job :-D.

Most fascinating place I’ve ever lived? … I have lived in Kentucky … interesting adventure to say the least.

Favorite food? Tacos have a special place in my heart.

I am a UW alumni for both undergrad and medical school … soooo Go Badgers!

Favorite book or movie? I enjoy curling up with a good scare and find myself thumbing through Steven King’s collection of short stories from time to time. I am a fantasy nerd at heart so LotR will always win this question. I enjoy classic stories that are reinvented … especially when the focus is on the villain of the classic tale.

Three wishes: Alright do I Lisa or Bart this … truthfully 1. The health and wellness of my friends and loved ones (and myself) 2. Debts forgiven for my colleagues and family (and myself) 3. To always be able to keep doing what I love and that brings me joy.

Fun fact about yourself? … you will just have to ask me this one in person …

Staff Spotlight – Dawn Ebach, MD

Dr. Ebach is Clinical Professor with the Division of Gastroenterology, Hepatology, Pancreatology and Nutrition.

I have been here 14 years – I came here right after I completed fellowship. My husband, Will, works in IT at the University of Iowa Libraries. My son, Gavin is a sophomore at West High and my daughter, Paisley is a 7th grader at Northwest Junior High.

I enjoy bicycling – I am on the Children’s Hospital RAGBRAI team. I have also been doing some sprint Triathlons. I am active in BSA – my son is working on Eagle Scout and my daughter has recently joined a female troop. I am the assistant Scout Master.

Fun fact: I was born in Rugby, North Dakota – it is the geographical center of North America I lived in a tent for 3 summers at Philmont Boy Scout Ranch in New Mexico.

Staff Spotlight – Deborah Lin-Dyken, MD

Dr. Lin-Dyken is Clinical Professor in the Division of Developmental and Behavioral Pediatrics.

I have been here 31 years, the first 3 as a Fellow in Developmental Disabilities, then as an Associate, Assistant Professor, then Associate Professor.

I have been married to Mark Eric Dyken, MD for 31 years! We have 2 wonderful children. Our daughter Jennifer is 28, graduated from UI with a degree in biology, and lives in Madison, WI, where she is the Instructional Specialist for the internal medicine residency at the University of Wisconsin. Our son, Mark, is 24, graduated from UI with a degree in Human Physiology and is currently an MPH student in the College of Public Health. We also have a dog Remus and a cat Buddy!

In my free time I like to exercise, travel, read, cook (and eat)!

My dream job would be as a restaurant critic – I love to try new foods!

Most fascinating place ever lived or visited? Shanghai, China. It is where my parents were born and raised.

Favorite meal or restaurant? Dim sum!

Favorite book or movie? Book: “Where The Wild Things Are”, by Maurice Sendak. It is the first book our daughter ever “read”. Movie: “Forrest Gump”.

My 3 wishes? 1. To cruise around the world 2. To have met my grandparents 3. For the Hawkeyes to win the BCS!

Fun fact? I love Broadway musicals!

Two Epic Upgrades Coming in December

There are two important Epic upgrades coming in December.

  • December 7 – 2019 System Upgrade
    • The next system update to Epic goes live December 7th at 1:00 AM. Check out the Epic Report Support Site for a full deck of upgrade slides.
    • Beginning October 28, providers can also begin practicing with the new Epic layouts and features in the Epic Playground.
    • There will be drop-in help days established in the near future so any provider can drop-in and get some help with the new updates, as needed.
  • December 17 – MyChart Proxy Access update
    • UI Health Care has decided to provide parents and legal guardians with full access to their child’s information via MyChart up until 14. At that point, they can continue to view their child’s MyChart account, but with a limited level of access to information. They can print immunization records, send messages to clinic staff, and pay bills. Additionally, parents and legal guardians always have access to any portion of their child’s medical record to which they are legally entitled. They can request this information via MyChart or in a letter addressed to Health Information Management Department.
    • This change from full to limited access in MyChart for parents and legal guardians when the child turns age 14 will go into effect on December 17, 2019.
    • Additionally, if the patient has a long-term chronic illness, we have now created a new type of MyChart Parental/Legal Guardian (Unrestricted) Access.  This allows providers to grant full parental/legal guardian access after the child turns 14 years old.  This access is good for one year and needs to be renewed annually if appropriate.  Providers will need to have private conversations with both the patient and parent/legal guardian before access can be granted. 
    • Additional resources can be found here or here.

Dr. Vyas Publishes on Wiskott-Aldrich Syndrome

Congratulations to Dr. Yatin Vyas (Hematology/Oncology) on his recent publication in the Journal of Allergy and Clinical Immunology on Wiskott Aldrich Syndrome.

Wen KK, Han SS, Vyas YM. Wiskott-Aldrich syndrome protein senses irradiation-induced DNA damage to coordinate the cell-protective Golgi dispersal response in human T and B lymphocytes. J Allergy Clin Immunol. 2019 Oct 8. pii: S0091-6749(19)31263-1. doi: 10.1016/j.jaci.2019.09.026. [Epub ahead of print].

Conclusion:

The study identifies WASp as a novel effector of nucleus-to-Golgi, cell-survival pathway triggered by IR-induced DNA damage in the cells of the hematolymphoid lineage, and proposes impaired GDR as a new etiology in the development of a “radiosensitive” form of immune dysregulation in WAS